Events

D.A.D.S Meet-Up
Apr
21

D.A.D.S Meet-Up

Featuring good food/drinks, conversation, and fun. Come out for the evening and relax with friends- new and old! All dads and male caregivers of individuals with Down syndrome are welcome!

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Dash and Scout Independent Living Retreat (Ladies 18+ only)
Apr
24
to Apr 26

Dash and Scout Independent Living Retreat (Ladies 18+ only)

Independent Living Retreats & Camps

Dave’s Place

Dave’s Place is a transformative independent living retreat experience aimed at improving essential life skills and problem solving. This is an opportunity to learn about:

· Living away from home with other roommates.

· Develop friendships with peers.

· Create skills that will help in the workplace.

· Become a contributing member of the household in which they live.

·  Work together as a team, social etiquette, conversation skills, personal boundaries, expressing and identifying emotions, nonverbal communication and stress management.

· Occupy free time, plan social events, enhance time management skills, explore interests, develop hobbies, etc.

· Kitchen management, household chores, safety and emergency training, simple household repairs, and decision-making.

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DSANV Coffee Meet-Up
Apr
29

DSANV Coffee Meet-Up

Join DSANV at Cameron’s Coffee & Chocolates for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

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DSANV@ Disability Resource Fair
May
5

DSANV@ Disability Resource Fair

The Arc of Loudoun’s Disability Resource Fair is a free event to learn more about the disability resources in our community. We anticipate having up to 75 vendors and resources; see the current vendor listing below. Don’t miss this opportunity to learn and connect with community resources!

Hosted by The Arc of Loudoun, this free event offers families, self-advocates, and caregivers the chance to learn more about the disability resources available throughout our community.

For more information, reach out to ally@thearcofloudoun.org.

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Info Session: From One Stage to the Next—Building Confidence for Every Transition (Virtual)
May
7

Info Session: From One Stage to the Next—Building Confidence for Every Transition (Virtual)

From One Stage to the Next—Building Confidence for Every Transition

Transitions—whether entering early intervention, starting school, moving between grade levels, or preparing for adulthood—can feel overwhelming for children with Down syndrome and their families. This session focuses on practical, strengths-based strategies to help families support smooth, confident transitions at every stage of development.

Learning Objectives:

By the end of the session, participants will be able to:

  1. Identify key transition points from early childhood through adolescence

  2. Understand common challenges and opportunities during transitions

  3. Apply strategies to support communication, independence, and emotional readiness

  4. Strengthen family advocacy skills during transition planning processes

  5. Collaborate effectively across systems (home, school, community)

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Dash and Scout Independent Living Retreat (Guys 18+ only)
May
8
to May 10

Dash and Scout Independent Living Retreat (Guys 18+ only)

Independent Living Retreats & Camps

Dave’s Place

Dave’s Place is a transformative independent living retreat experience aimed at improving essential life skills and problem solving. This is an opportunity to learn about:

· Living away from home with other roommates.

· Develop friendships with peers.

· Create skills that will help in the workplace.

· Become a contributing member of the household in which they live.

·  Work together as a team, social etiquette, conversation skills, personal boundaries, expressing and identifying emotions, nonverbal communication and stress management.

· Occupy free time, plan social events, enhance time management skills, explore interests, develop hobbies, etc.

· Kitchen management, household chores, safety and emergency training, simple household repairs, and decision-making.

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NDSS Advocacy Conference
May
11
to May 13

NDSS Advocacy Conference

The National Down Syndrome Society is hosting its annual advocacy event in DC and all are invited to participate!

FOR: Individuals with Down syndrome of all ages & their families

DETAILS: Learn More HERE

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DSANV Coffee Meet-Up
May
19

DSANV Coffee Meet-Up

Join DSANV at Ridgetop Coffee & Tea for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

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DSANV Reading Program: Phonics the R-igh-t Way
May
20

DSANV Reading Program: Phonics the R-igh-t Way

Empowering Families. Building Lifelong Readers.

DSANV is proud to launch the DSANV Reading Program: Phonics the R-ight-t Way — a 9-month pilot literacy program designed to equip parents with the tools and confidence to teach reading to their loved one with Down syndrome (ages 3 and up).

This innovative program, already one of our most well-attended pilots, features the nationally recognized Raising Robust Readers curriculum and provides families with hands-on resources to build stronger literacy foundations at home.

Program Snapshot

  • Timeline: September 2025 – June 2026 (no session in December)

  • Format: 18 sessions (monthly in-person workshops at Burke Centre Library + monthly virtual sessions on Wednesday evenings)

  • Instructor: Certified teacher with expertise in literacy and Down syndrome education

  • Included Resources: Lifetime access to the Raising Robust Readers online program, Phonics the Right Way for Down Syndrome book, and FUN-O-Guide learning tool (the first 8 families received this $105 resource free, courtesy of DSANV)

  • LOCATION: Burke Centre Library 5935 Freds Oak Rd, Burke Centre, VA 22015

  • In-Person Session Dates (2025–2026)

    • September 17, 2025

    • October 15, 2025

    • November 19, 2025

    • (No December Session – Holiday Break)

    • January 21, 2026

    • February 18, 2026

    • March 18, 2026

    • April 15, 2026

    • May 20, 2026

    • June 17, 2026

Why It Matters

  • Families gain practical, research-based strategies to support literacy development at every stage

  • Parents connect with a community of peers learning side-by-side

  • This pilot reflects DSANV’s commitment to offering high-impact, evidence-based programming that empowers families

Registration Status

Registration for the DSANV Reading Program: Phonics the R-ight-t Way is now closed.

We are thrilled by the overwhelming response and will share updates and future opportunities with our community as this program unfolds.

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D.A.D.S Meet-Up
May
21

D.A.D.S Meet-Up

Featuring good food/drinks, conversation, and fun. Come out for the evening and relax with friends- new and old! All dads and male caregivers of individuals with Down syndrome are welcome!

View Event →
DSANV Coffee Meet-Up
Jun
9

DSANV Coffee Meet-Up

Join DSANV at Ridgetop Coffee & Tea for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

View Event →
DSANV Reading Program: Phonics the R-igh-t Way
Jun
17

DSANV Reading Program: Phonics the R-igh-t Way

Empowering Families. Building Lifelong Readers.

DSANV is proud to launch the DSANV Reading Program: Phonics the R-ight-t Way — a 9-month pilot literacy program designed to equip parents with the tools and confidence to teach reading to their loved one with Down syndrome (ages 3 and up).

This innovative program, already one of our most well-attended pilots, features the nationally recognized Raising Robust Readers curriculum and provides families with hands-on resources to build stronger literacy foundations at home.

Program Snapshot

  • Timeline: September 2025 – June 2026 (no session in December)

  • Format: 18 sessions (monthly in-person workshops at Burke Centre Library + monthly virtual sessions on Wednesday evenings)

  • Instructor: Certified teacher with expertise in literacy and Down syndrome education

  • Included Resources: Lifetime access to the Raising Robust Readers online program, Phonics the Right Way for Down Syndrome book, and FUN-O-Guide learning tool (the first 8 families received this $105 resource free, courtesy of DSANV)

  • LOCATION: Burke Centre Library 5935 Freds Oak Rd, Burke Centre, VA 22015

  • In-Person Session Dates (2025–2026)

    • September 17, 2025

    • October 15, 2025

    • November 19, 2025

    • (No December Session – Holiday Break)

    • January 21, 2026

    • February 18, 2026

    • March 18, 2026

    • April 15, 2026

    • May 20, 2026

    • June 17, 2026

Why It Matters

  • Families gain practical, research-based strategies to support literacy development at every stage

  • Parents connect with a community of peers learning side-by-side

  • This pilot reflects DSANV’s commitment to offering high-impact, evidence-based programming that empowers families

Registration Status

Registration for the DSANV Reading Program: Phonics the R-ight-t Way is now closed.

We are thrilled by the overwhelming response and will share updates and future opportunities with our community as this program unfolds.

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iCan Bike Camp
Jun
22
to Jun 26

iCan Bike Camp

The vast majority of people with disabilities never experience the thrill of independently riding a two-wheel bicycle during their lifetime. Recent research shows that over 80% of people with Autism and 90% of people with Down syndrome never learn to ride a two-wheel bicycle. iCan Bike defies those odds! The program builds on more than twenty years of research at the University of Illinois. Join us for camp the week of June 22nd!

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DSANV Park Meet-Up
Jun
22

DSANV Park Meet-Up

Kickoff the summer season with your friends from DSANV! Cool down in Hanson Regional Park’s splash pad or explore one of its many playgrounds.

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DSANV Coffee Meet-Up
Jul
18

DSANV Coffee Meet-Up

Join DSANV at SimplyBe Coffee for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

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iCan Swim Camp Week 1
Aug
3
to Aug 7

iCan Swim Camp Week 1

DSANV is partnering with iCan Shine to bring the iCan Swim Camp to Northern Virginia. Teaching people with disabilities to swim is not only a good idea, it’s essential. Creating an effective swimming program for people with disabilities takes a patient understanding of each swimmer as well as a well-thought-out plan for how the lessons can be adapted to each child. This is the foundation of our iCan Swim program.

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iCan Swim Camp Week 2
Aug
10
to Aug 14

iCan Swim Camp Week 2

DSANV is partnering with iCan Shine to bring the iCan Swim Camp to Northern Virginia. Teaching people with disabilities to swim is not only a good idea, it’s essential. Creating an effective swimming program for people with disabilities takes a patient understanding of each swimmer as well as a well-thought-out plan for how the lessons can be adapted to each child. This is the foundation of our iCan Swim program.

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DSANV Coffee Meet-Up
Aug
25

DSANV Coffee Meet-Up

Join DSANV at Ridgetop Coffee & Tea for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

View Event →
DSANV Coffee Meet-Up
Sep
12

DSANV Coffee Meet-Up

Join DSANV at SimplyBe Coffee for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

View Event →
DSANV Coffee Meet-Up
Oct
24

DSANV Coffee Meet-Up

Join DSANV at Ridgetop Coffee & Tea for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

View Event →

DSANV Coffee Meet-Up
Apr
18

DSANV Coffee Meet-Up

Join DSANV at BKD Bagels (Fort Evans) for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

View Event →
DSANV Reading Program: Phonics the R-igh-t Way
Apr
15

DSANV Reading Program: Phonics the R-igh-t Way

Empowering Families. Building Lifelong Readers.

DSANV is proud to launch the DSANV Reading Program: Phonics the R-ight-t Way — a 9-month pilot literacy program designed to equip parents with the tools and confidence to teach reading to their loved one with Down syndrome (ages 3 and up).

This innovative program, already one of our most well-attended pilots, features the nationally recognized Raising Robust Readers curriculum and provides families with hands-on resources to build stronger literacy foundations at home.

Program Snapshot

  • Timeline: September 2025 – June 2026 (no session in December)

  • Format: 18 sessions (monthly in-person workshops at Burke Centre Library + monthly virtual sessions on Wednesday evenings)

  • Instructor: Certified teacher with expertise in literacy and Down syndrome education

  • Included Resources: Lifetime access to the Raising Robust Readers online program, Phonics the Right Way for Down Syndrome book, and FUN-O-Guide learning tool (the first 8 families received this $105 resource free, courtesy of DSANV)

  • LOCATION: Burke Centre Library 5935 Freds Oak Rd, Burke Centre, VA 22015

  • In-Person Session Dates (2025–2026)

    • September 17, 2025

    • October 15, 2025

    • November 19, 2025

    • (No December Session – Holiday Break)

    • January 21, 2026

    • February 18, 2026

    • March 18, 2026

    • April 15, 2026

    • May 20, 2026

    • June 17, 2026

Why It Matters

  • Families gain practical, research-based strategies to support literacy development at every stage

  • Parents connect with a community of peers learning side-by-side

  • This pilot reflects DSANV’s commitment to offering high-impact, evidence-based programming that empowers families

Registration Status

Registration for the DSANV Reading Program: Phonics the R-ight-t Way is now closed.

We are thrilled by the overwhelming response and will share updates and future opportunities with our community as this program unfolds.

View Event →
Info Session: Potty Training Children with Down Syndrome: Lose the Diapers, Not Your Patience (Virtual)
Apr
2

Info Session: Potty Training Children with Down Syndrome: Lose the Diapers, Not Your Patience (Virtual)

Toilet training is an incredibly complex and often frustrating process for families. Join us in this virtual information session, Dr. Lina Patel will review the medical, physical, behavioral, emotional, and environmental factors that impact children with Down syndrome more significantly. Participants will learn practical strategies to address these challenges and leave with the tools to create an individualized toilet training plan for their child

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World Down Syndrome Day EXTRAVAGANZA 2026
Mar
21

World Down Syndrome Day EXTRAVAGANZA 2026

Event Description:

Join us for the World Down Syndrome Day Party!

Featuring food trucks, a DJ, and fun! Shop our “Made with Heart Market” showcasing hand-crafted items from talented individuals with Down syndrome, paired with local businesses that embrace inclusive hiring. You wont want to miss our 18+ VIP area with karaoke.

Cost:

FREE for our VIPs (Person with Down Syndrome)

$15 Adult Ticket

$10 Child Ticket

FREE Child 2 years and under

Registration: WDSD EXTRAVAGANZA

This is an inclusive event. All ages and abilities are welcome! This is a family and community event. It is not a drop-off event. Bring your friends and family- the more, the merrier!

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WDSD Park Meet-Up
Mar
20

WDSD Park Meet-Up

Let WDSD Weekend begin! Stop by the park next to South Run Recreation Center for a relaxed meet-up with fellow DSANV families. All ages welcome!

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D.A.D.S Meet-Up
Mar
19

D.A.D.S Meet-Up

Featuring good food/drinks, conversation, and fun. Come out for the evening and relax with friends- new and old! All dads and male caregivers of individuals with Down syndrome are welcome!

View Event →
DSANV Reading Program: Phonics the R-igh-t Way
Mar
18

DSANV Reading Program: Phonics the R-igh-t Way

Empowering Families. Building Lifelong Readers.

DSANV is proud to launch the DSANV Reading Program: Phonics the R-ight-t Way — a 9-month pilot literacy program designed to equip parents with the tools and confidence to teach reading to their loved one with Down syndrome (ages 3 and up).

This innovative program, already one of our most well-attended pilots, features the nationally recognized Raising Robust Readers curriculum and provides families with hands-on resources to build stronger literacy foundations at home.

Program Snapshot

  • Timeline: September 2025 – June 2026 (no session in December)

  • Format: 18 sessions (monthly in-person workshops at Burke Centre Library + monthly virtual sessions on Wednesday evenings)

  • Instructor: Certified teacher with expertise in literacy and Down syndrome education

  • Included Resources: Lifetime access to the Raising Robust Readers online program, Phonics the Right Way for Down Syndrome book, and FUN-O-Guide learning tool (the first 8 families received this $105 resource free, courtesy of DSANV)

  • LOCATION: Burke Centre Library 5935 Freds Oak Rd, Burke Centre, VA 22015

  • In-Person Session Dates (2025–2026)

    • September 17, 2025

    • October 15, 2025

    • November 19, 2025

    • (No December Session – Holiday Break)

    • January 21, 2026

    • February 18, 2026

    • March 18, 2026

    • April 15, 2026

    • May 20, 2026

    • June 17, 2026

Why It Matters

  • Families gain practical, research-based strategies to support literacy development at every stage

  • Parents connect with a community of peers learning side-by-side

  • This pilot reflects DSANV’s commitment to offering high-impact, evidence-based programming that empowers families

Registration Status

Registration for the DSANV Reading Program: Phonics the R-ight-t Way is now closed.

We are thrilled by the overwhelming response and will share updates and future opportunities with our community as this program unfolds.

View Event →
Info Session: IEP Q&A
Mar
17

Info Session: IEP Q&A

Join DSANV for an informative evening dedicated to navigating the complexities of the Individualized Education Program (IEP) process. This session features Elizabeth Tuomey and Kaitlynn Fraze, PhD, from the Tuomey Law Firm.

This is a unique opportunity to meet with a legal expert and a dedicated special education advocate to get answers to your specific questions. Whether you are new to the IEP process or looking for guidance on systems-level advocacy and evidence-based educational opportunities, this Q&A is designed to provide you with practical support for students with intellectual and developmental disabilities.

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Lucky Mama Sip & Stroll
Mar
17

Lucky Mama Sip & Stroll

Kick off your St. Patrick’s Day with DSANV’s first Lucky Mama Sip & Stroll! Join DSANV Regional Engagement Coordinators for a beverage at Jirani Coffeehouse followed by a 21-minute walk through Old Town Manassas.

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VDSA 12th Education & Transition Conference
Mar
14

VDSA 12th Education & Transition Conference

  • J. Sargeant Teynolds Community College - Parham Campus (map)
  • Google Calendar ICS

Inclusion in Action: Empowering our community to shape tomorrow

Join the Virginia Down Syndrome Association for our 2026 Disability Education & Transition Conference. We hope to engage educators, families, and professionals across Virginia with the knowledge, strategies, and connections needed to support individuals with intellectual and/or developmental disabilities in their educational journeys and beyond—fostering inclusive, lifelong pathways toward independence and belonging.

Our 12th Disability Education & Transition Conference will make a return visit to J. Sargeant Reynolds Community College - Parham Campus. This year we will be in the Massey Library Technology Center Building.


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Info Session: Movement is Essential for all Children - Meet Jen Leonard and Lindsay Luhman from Playtime PT (Virtual)
Mar
11

Info Session: Movement is Essential for all Children - Meet Jen Leonard and Lindsay Luhman from Playtime PT (Virtual)

Join us for an informative session where we will:

  • Introduce Playtime PT programs, including Biking, Yoga, and Purposeful Play for infants and toddlers.

  • Discuss how movement is essential for all children—not only for physical development but also for building confidence, connection, learning, and joy.

    • Focus on the importance of accessible, meaningful movement opportunities specifically for children with Down syndrome.

    • Highlight how inclusive, play-based approaches can support strength, coordination, participation, and overall development.

    • Briefly touch on parent advocacy in the context of physical development and therapy.

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DSANV Coffee Meet-Up
Mar
7

DSANV Coffee Meet-Up

Join DSANV at SimplyBe Coffee for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!  No registration required.  

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Porto Charities 2026 Conference
Mar
7

Porto Charities 2026 Conference

For years, we have partnered with Porto Charities to bring programming and opportunities for our VIPs. It is our pleasure to invite you to their 2026 conference. Inspired by the truth that all are formed in the image of God and called to share our unique gifts, Porto Charities and the Diocese of Arlington invite you to a day of fellowship and action.

Join parents, educators, catechists, clergy, and religious to explore concrete ways we can cultivate a beautiful life of belonging for individuals with disabilities within our schools and parishes.

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Omnium Circus
Mar
1

Omnium Circus

Experience the magic of inclusion under the big top! Omnium Circus returns to Washington, DC with an all-new, star-studded production celebrating the power of community, diversity, and belonging.

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TOPSoccer Clinic (Chantilly HS)
Mar
1

TOPSoccer Clinic (Chantilly HS)

US Youth Soccer TOPSoccer (The Outreach Program for Soccer) is a recreational sports program for children and adults with intellectual, emotional, or physical disabilities. TOPSoccer provides people with diverse abilities an opportunity to play soccer in a structured environment that is safe, fun, supportive, and inclusive.

US Youth Soccer TOPSoccer has a free TOPS clinic on Sunday, March 1 inside the gym at Chantilly HS.

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DSANV Coffee Meet-Up
Feb
28

DSANV Coffee Meet-Up

Join DSANV at Vita Nova Creatives & Coffee for an informal meet-up with fellow parents of children with Down syndrome.  Grab a cup, sit back, and chat!  Children are welcome!

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NDSS Webinar: Transitioning from School to Adulthood - A Guide for Families & Caregivers
Feb
19

NDSS Webinar: Transitioning from School to Adulthood - A Guide for Families & Caregivers

This FREE session, led By Jessica Kuss, NDSS Director of Community Programs, highlights key resources in health care, education, employment, and community life, while emphasizing the importance of early planning and self-advocacy. Participants will gain practical insights to help young adults build the skills, support, and confidence needed for a successful, self-directed transition.

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DSANV Reading Program: Phonics the R-igh-t Way
Feb
18

DSANV Reading Program: Phonics the R-igh-t Way

Empowering Families. Building Lifelong Readers.

DSANV is proud to launch the DSANV Reading Program: Phonics the R-ight-t Way — a 9-month pilot literacy program designed to equip parents with the tools and confidence to teach reading to their loved one with Down syndrome (ages 3 and up).

This innovative program, already one of our most well-attended pilots, features the nationally recognized Raising Robust Readers curriculum and provides families with hands-on resources to build stronger literacy foundations at home.

Program Snapshot

  • Timeline: September 2025 – June 2026 (no session in December)

  • Format: 18 sessions (monthly in-person workshops at Burke Centre Library + monthly virtual sessions on Wednesday evenings)

  • Instructor: Certified teacher with expertise in literacy and Down syndrome education

  • Included Resources: Lifetime access to the Raising Robust Readers online program, Phonics the Right Way for Down Syndrome book, and FUN-O-Guide learning tool (the first 8 families received this $105 resource free, courtesy of DSANV)

  • LOCATION: Burke Centre Library 5935 Freds Oak Rd, Burke Centre, VA 22015

  • In-Person Session Dates (2025–2026)

    • September 17, 2025

    • October 15, 2025

    • November 19, 2025

    • (No December Session – Holiday Break)

    • January 21, 2026

    • February 18, 2026

    • March 18, 2026

    • April 15, 2026

    • May 20, 2026

    • June 17, 2026

Why It Matters

  • Families gain practical, research-based strategies to support literacy development at every stage

  • Parents connect with a community of peers learning side-by-side

  • This pilot reflects DSANV’s commitment to offering high-impact, evidence-based programming that empowers families

Registration Status

Registration for the DSANV Reading Program: Phonics the R-ight-t Way is now closed.

We are thrilled by the overwhelming response and will share updates and future opportunities with our community as this program unfolds.

View Event →
D.A.D.S Meet-Up
Feb
17

D.A.D.S Meet-Up

Featuring good food/drinks, conversation, and fun. Come out for the evening and relax with friends- new and old! All dads and male caregivers of individuals with Down syndrome are welcome!

View Event →
Info Session: Meet the DSANV Regional Engagement Coordinators (Virtual)
Feb
12

Info Session: Meet the DSANV Regional Engagement Coordinators (Virtual)

Kickoff 2026 with three of DSANV‘s newest team members -- Regional Engagement Coordinators (RECs) Erin Jones, Dana Laukhuf, and Emily Sachs.  During this session, attendees will learn more about the recently-added REC positions and how they align with DSANV’s five-year strategic plan. The REC team will share details of the fun-filled DSANV events planned for early 2026.  At session’s end, attendees will have the opportunity to share their suggestions for future DSANV events with the REC team.  We hope to see you there! 

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