Family
Resources

Family Resources

DSANV has compiled the following resources to assist our families. If you have additional resources that could benefit our community, please submit the resource contribution form at the bottom of the page.

  • Run through the Virginia Department of Behavioral Health and Developmental Services. IFSP provides funding for those on the DD Waitlist and hosts the website My Life, My Community https://www.mylifemy communityvirginia.org/.

    My Life, My Community is an online tool that helps people with developmental disabilities (DD) and their families answer basic questions about services and supports. 

    Sign up to get news and updates from the IFSP email list

    IFSP First Steps

    My Life My Community 

  • The CFI is part of the Partnership for People with Disabilities at VCU. It has a network of staff and volunteer Family Navigators who have lived experience and provide one to one emotional, informational and systems navigational support for individuals with disabilities and their family members. For more information and assistance on a wide variety of resources.

    Call the Helpline (877) 567-1122 or email cfihelpline@vcu.edu

    Families and professionals can also make a referral to CFI online.       

  • The Arc of Northern Virginia's operates a special needs trust program. They plan and manage trusts, welcome new clients, answer questions, and present free online webinars, First Fridays Future Planning and Trust Talk Tuesdays.

  • One of Virginia’s two Medicaid-related premium assistance programs that help pay for employer-sponsored health insurance. You or a member of your family must first be enrolled in a Medicaid program to be eligible to apply for the HIPP programs. This is a cost savings program administered by Virginia Medicaid.

    Eligibility criteria include, but are not limited to the following:

    • A family member must be enrolled in full coverage Medicaid and be less than 19 years of age.

    • The employer must pay at least 40% of the cost of the health insurance premium.

    • Must be enrolled in a health plan that meets the definition of a “qualified employer sponsored plan” that qualifies as creditable coverage under the section 2701(c) (1) of the Public Health Service Act and must be offered to all people in a manner that would be considered nondiscriminatory eligibility.

    • Must not be a plan with deductibles that are equal to or exceed IRS High Deductible Health Plan limits.

    Phone: (800) 432-5924

    Email: HIPPcustomerservice@dmas.virginia.gov

  • One of Virginia’s two Medicaid-related premium assistance programs that help pay for employer-sponsored health insurance. You or a member of your family must first be enrolled in a Medicaid program to be eligible to apply for the HIPP programs. This is a cost savings program administered by Virginia Medicaid.

    Eligibility criteria include, but are not limited to the following:

    • A family member must be enrolled in full coverage Medicaid. The health plan must meet cost-effectiveness evaluation.

    • Must be enrolled in a health plan that meets the definition of a “qualified employer sponsored plan” that qualifies as creditable coverage under the section 2701(c) (1) of the Public Health Service Act and must be offered to all people in a manner that would be considered nondiscriminatory eligibility.

    • Must not be a plan with deductibles that are equal to or exceed IRS High Deductible Health Plan limits.

    Phone: (800) 432-5924

    Email: HIPPcustomerservice@dmas.virginia.gov

  • This list is not intended to be comprehensive of all books available about Down syndrome. There may be many other worthy books available. Feel free to check with other parents, your library, bookstore, and the National Down Syndrome Organizations.

 

Current Research Studies

Here is a list of current research studies in need of participants. Please note that DSANV has no

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Local Organizations

National Organizations

Share a Resource.

If you would like to share a resource with our community please complete the form to the right. Staff will review and post new resources monthly. DSANV reserves the right to review and post only the most beneficial resources to assist our members.

Listing of outside events and services is prohibited. Visit Get Involved if you are interested in becoming a sponsor or partner please.