Recorded Parent Webinars
Webinar Series with Dr. Chris Barthold.
DSANV is proud to present a three part webinar series with Dr. Chris Hoffner Barthold, a Behavior Analyst from George Mason University! We are excited to collaborate with Chris to facilitate webinars that address the unique challenges of quarantining at home while parenting a child who has a developmental disability.
Chris is a Board Certified Behavior Analyst-Doctoral (BCBA-D™) who has a passion for helping people to be their best selves. She has been working with individuals with developmental disabilities of all ages for over 25 years, and received her BCBA in 2007. In addition, Chris has worked with organizational behavior change as well as supervision and management. For the past 7 years, Chris has been a faculty member at George Mason University, coordinating teaching courses in the Applied Behavior Analysis program. She believes that a good academic should also practice and stay current in the field. She calls it being “on the ground floor of the Ivory Tower.”
In addition to being a BCBA-D, Chris holds certifications as a Personal Trainer and Health Coach from the American Council on Exercise, Compassion Fatigue Professional and Certified Clinical Trauma Professional.
Session One: Structuring your day while the kids are at home
One of the most challenging aspects of staying at home is creating a schedule to help structure your child’s day. In this workshop, we will address the mechanics of creating a schedule for your family. We will especially focus on making visual schedules, and we will review a number of examples with suggestions for how they could be integrated into your home.
Session Two: Promoting appropriate behavior at home
Now more than ever, we need easy strategies to promote appropriate behavior and peace at home. In this workshop, we will be talking about reinforcing appropriate behavior. We’ll discuss why reinforcement is different than giving bribes, why it works better than punishing inappropriate behavior, selecting good reinforcers, and using them appropriately. We’ll also bust some myths around reinforcement.
Session Three: Promoting appropriate behavior at home II — Using token systems
While this workshop is Part II, it is not necessary to attend the first one to benefit. We will discuss a specific type of reinforcement – the token system. We will talk about how to set up an effective token system, selecting tokens, and common errors seen when using tokens. After this presentation, you should be able to implement a simple system in your home that is customized to your needs.
Panel Discussion on a Sleep Apnea Surgical Alternative
The Down Syndrome Association of Northern Virginia (DSANV) hosted a free panel discussion webinar on a surgical alternative to treating sleep apnea—something that affects many individuals with Down syndrome and other conditions that obstruct the airway. The FDA has already approved the device we’ll be discussing for adults; approval for children is still in the phase of clinical trials.
Our panel discussion included two DSANV members whose daughters participated in a children’s clinical trial, one of the young ladies spoke for herself, her surgeon and a representative from the manufacturer of the Inspire® device.
Panelists:
- Cristina Baldassari, MD, FAAP, FACS – Associate Professor in Pediatric Otolaryngology at CHKD (Children’s Hospital of The King’s Daughters) and Ear, Nose and Throat surgeon. You can click on Dr. Baldassari’s name to email her directly to inquire about joining the new trial of patients for the Inspire® treatment.
- Barbara Hoopes, PhD – Associate Professor of Business Information Technology at Virginia Polytechnic Institute and State University, longtime DSANV member and mother of Anna who is a current Inspire® user
- Kathryn Ramchand – Past President of the DSANV Board of Directors, longtime DSANV member and mother of a current Inspire® user
- Anna Mutter – current Inspire® user
- Adam Wimmer – Regional Manager DC/MD/VA, Inspire Medical Systems, Inc.
Resources for those wishing to find more information on Inspire:
- A new app on the IOS and Android Store available for download by typing in “Inspire Sleep” into the search box. Here is the QR code for easy access:
- Parents who are strongly considering or in the process of pursuing the trial there is a Facebook group: https://www.facebook.com/groups/1304364119703711/?ref=share
Programs
Proposed Dates DADS (Dads appreciating Down syndrome) meetings 7:00 -9:00 PM September 21st (Thursday) October
In 2024, DSANV is continuing to offer three options for BINGO. The third Wednesday of
If you are an expectant parent or have been parenting your child with Down Syndrome
Apple Day – Sunday, September 24, 2023 11:00 AM – 1:00 PM Come join is in
DSANV Events
Sunday October 1, 2023 Workhouse Art Center Register here
Community Events
Legal and Financial Planning Workshop
Legal and Financial Planning Workshop for Individuals with Disabilities and Their Families
AAC Parent Support Group- November 18, 2023 10:00AM
Our AAC Parent Support Group seeks to connect parents of individuals using AAC to share successes and challenges, gather helpful ideas and resources, and empower families to support the development of successful communication skills for their AAC user. This group is free of charge and open to all. Feel free to share with others who may be interested!
Chipolte Fundraiser to benefit the 2023DSANV Buddy Walk®
CHIPOTLE FUNDRAISER FORDOWN SYNDROME ASSOCIATION OFNORTHERN VIRGINIA33% OF EVENT SALES GET DONATED TO THE CAUSEMONDAY,
The Elder and Disability Law Clinic at the College of William and Mary is offering
Infant Brain Imaging Study Recruiting Participants
Hello! Happy New Year! I hope your year is off to a great start at
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November 2023 DSANV Newsletter
November 2023 DSANV Newsletter
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