Congratulations on your pregnancy, and welcome to our community. If you have just received a confirmed or suspected diagnosis of Down syndrome, you may be feeling very afraid, alone, and overwhelmed by this unexpected news. We offer information that can help.
This website offers basic information about Down syndrome
, and some glimpses
into the lives of people who have Down syndrome. We also recommend these resources:
- The Joseph P. Kennedy, Jr. Foundation's "Understanding a Down Syndrome Diagnosis" is an accurate, balanced, and up-to-date booklet for use when delivering a diagnosis of Down syndrome. The booklet is the only prenatal resource to have been reviewed by representatives of the national medical and Down syndrome organizations and is available in both print and digital formats. You can download a free copy here (http://lettercase.org/get-the-booklet/) "Understanding a Down Syndrome Diagnosis" covers the following:
- Available health and education services
- Common medical conditions for babies with Down syndrome
- Information about pregnancy options
- Helpful resources about the condition
- Spanish translation included in all booklets
- Optimization for different reading levels
- Down Syndrome Pregnancy (http://downsyndromepregnancy.org/) is available to help you on this journey, prepare you for the immediate future, and give you hope. They also offer a free downloadable Down syndrome pregnancy book and valuable supplemental information in the Resources section.
- You can find open dialogue on Baby Center's Down syndrome pregnancy board.
- Brighter Tomorrows (http://brightertomorrows.org) supports families with accurate information about Down syndrome.