Internships
Please send a resume to Mary.Ford@DSANV.org
Director of Business Development
Status: Half-time Temporary Position
Reports to: DSANV Executive Director
Location: 10467 White Granite Dr., Oakton, VA and remotely
Effective: July – December 2021
Essential Duties and Responsibilities: responsible for engaging current and prospective members, donors, sponsors and grantors to maintain and increase the total amount of donations made to DSANV on an annual basis. Specific duties include:
- Donor management – work with staff and volunteers to continue to increase the number and quality of communications with current and prospective donors; document these communications in a donor management system; attract additional donors, and to increase the number and amount of recurring donations made to DSANV
- Sponsor management – identify and communicate with potential corporate and organizational sponsors to increase sponsorships; document sponsor communications; and for events, follow up with sponsors afterwards to ensure DSANV delivered on all promises and to solicit feedback
- Grant writing – monitor the grant database for applicable grant opportunities, research grant targets, document relevant grant target data to include organizational POCs and application deadlines, work with staff and other volunteers to prepare grant applications and provide status information on grant activities as needed
- Fundraising campaign support – work with staff and volunteers to help design and execute focused fundraising campaigns of various sizes; collect data, communicate with participants, plan social media communications document progress and report status
- Fundraising event support – work with staff and volunteers to plan and execute new fundraising events, help plan large community events that include fundraising
Required Qualifications:
- Education and/or experience in one or more aspects of business development (e.g., fundraising, grant/proposal writing, donor management) for nonprofit organizations or corporations
- Advanced social media marketing skills
- Excellent interpersonal skills
- This position is open to individuals of all abilities
Desired Qualifications:
- Experience conducting business development for a non-profit organization
- Experience populating donor management databases/systems and creating reports from them to facilitate decision making
Director of Family Support
Status: Half-time Temporary Position
Report to: DSANV Executive Director
Location: 10467 White Granite Dr., Oakton, VA and remotely
Effective: July – December 2021
Essential Duties and Responsibilities: responsible for engaging new and existing DSANV members to answer their questions and provide information to assist families with challenges related to receiving a diagnosis of, or welcoming a new child with, Down syndrome and with other challenges experienced across the lifespan.
Three principle areas of responsibility include:
- Family Support Services – serve as a peer mentor responding to calls, texts and e-mails with questions from families about all aspects of living with Down syndrome and obtaining needed supports
- Community Medical Facility Outreach – interface with points of contact at local area hospitals and medical clinics to offer DSANV services to new parents receiving a diagnosis or welcoming a new child with Down syndrome
- New Parent Programming – manage quarterly DSANV New Parent Breakfasts (NPBs) and distribute New Parent welcome packages
Required Qualifications:
- Education or personal experience working with families of a child or adult with Down syndrome
- Advanced knowledge of a variety of long term services and supports, and the application processes for each, to include Medicaid, Social Security, Special Needs Trusts, and guardianship for individuals with intellectual and developmental disabilities
- Experience with Special Education services in one or more northern VA counties to include Individualized Education Planning
- Experience working through medical and dental challenges, and engaging speech, physical and occupational therapists
- Excellent interpersonal skills
- This position is open to individuals of all abilities
Desired Qualifications:
- Knowledge/experience working with families/schools/medical community in more than one northern VA county
- Proficiency in more than one language
Programs
Proposed Dates DADS (Dads appreciating Down syndrome) meetings 7:00 -9:00 PM September 21st (Thursday) October
In 2024, DSANV is continuing to offer three options for BINGO. The third Wednesday of
If you are an expectant parent or have been parenting your child with Down Syndrome
Apple Day – Sunday, September 24, 2023 11:00 AM – 1:00 PM Come join is in
DSANV Events
Sunday October 1, 2023 Workhouse Art Center Register here
Community Events
Legal and Financial Planning Workshop
Legal and Financial Planning Workshop for Individuals with Disabilities and Their Families
AAC Parent Support Group- November 18, 2023 10:00AM
Our AAC Parent Support Group seeks to connect parents of individuals using AAC to share successes and challenges, gather helpful ideas and resources, and empower families to support the development of successful communication skills for their AAC user. This group is free of charge and open to all. Feel free to share with others who may be interested!
Chipolte Fundraiser to benefit the 2023DSANV Buddy Walk®
CHIPOTLE FUNDRAISER FORDOWN SYNDROME ASSOCIATION OFNORTHERN VIRGINIA33% OF EVENT SALES GET DONATED TO THE CAUSEMONDAY,
The Elder and Disability Law Clinic at the College of William and Mary is offering
Infant Brain Imaging Study Recruiting Participants
Hello! Happy New Year! I hope your year is off to a great start at
News
November 2023 DSANV Newsletter
November 2023 DSANV Newsletter
October 2023 DSANV Newsletter
September 2023 Newsletter