Board of Directors
Kathryn has worked with the Federal government since 2001 as a linguist, analyst, and manager, and currently serves as the Deputy Director of her Agency’s Office of Equal Employment Opportunity. Originally from Knoxville, Tennessee, she moved to Washington, DC to pursue an undergraduate degree at Georgetown University. She volunteered for two years on the DSANV Buddy Walk committee, organized DSANV’s first orthotic donation program, and takes an active interest in legislative advocacy for disability rights to improve access to services for all individuals with intellectual and developmental disabilities.
Justin is a Senior Associate at Booz Allen Hamilton leading a portion of their Digital business portfolio in support of Federal government clients. He provides Agile technical project management for several large software development efforts. Justin and his wife Kristin were co-chairs of the 2018 DSANV Buddy Walk and have been active with DSANV and the National Down Syndrome Society (NDSS). He participated in the 2018 NDSS Run for 3.21 that ran 260 miles from Washington, D.C. to the United Nations in New York City to raise awareness for Down syndrome. Justin has a B.S. in Computer Science from Virginia Tech and an M.B.A. from the University of Maryland.
Casey is a Senior Managing Partner at Gartner. He is responsible for assisting retail clients with developing information technology strategies, business development, and account management. Previously, Casey was a Senior Manager with Kurt Salmon, Accenture and BearingPoint managing multi-million dollar global IT system implementation projects. After the birth of his son, he founded Eli’s Heart: a 501(c)(3) organization that helps families with travel expenses associated with medical procedures. Casey is active in the community raising awareness and funds for cancer initiatives in his support of Movember, Light the Night (LLS) and F5U Cancer. He also volunteers for Special Olympics. Casey graduated in 1993 with a Bachelor of Science degree in Political Science from East Carolina University.
Dorene manages research and development programs at Raytheon BBN Technologies where she has worked for eighteen years. Dorene holds a BS in mechanical engineering from Southern Methodist University, and a MS in mechanical engineering from Duke. She worked with the DSANV Buddy Walk team, and another parent volunteer, to create the first Imagine the PossABILITIES Tent at our walk. Together with two other parent volunteers, Dorene has run The Learning Program, Northern Virginia for a decade. The Learning Program, started by the Down Syndrome Foundation of Orange County, turns the research findings of Down Syndrome Education International into practical techniques for parents and educators.
Nora is a Federal Government employee with previous experience working for Booz Allen Hamilton, Computer Science Corporation and Intellectus. She previously served as a free-lance interpreter and translator, served as a Case Worker for “Team Hope” at the National Center for Missing and Exploited Children and volunteered for the Fairfax County Juvenile and Domestic Relations Court as an interpreter. Originally from Ecuador, and a proud US citizen, Nora has significant experience supporting the Latino Community in Northern Virginia. Her focus in serving on the Board is to connect DSANV nationally and internationally with the Spanish speaking community and to make sure that our services are available for our Hispanic families.
David is a Community Relations Specialist at SourceAmerica with their Government Affairs Department. He previously served as a staff member on Capitol Hill with the Ways and Means Social Security Subcommittee as JP Kennedy Jr. Public Policy Fellow–the first with an intellectual disability. He is a trailblazer with 20 years of competitive employment as a clerk in the Distribution Center with CBRE and experience working at the National Down Syndrome Society (NDSS). He serves on several Boards at the local, national and international levels. David is a Special Olympics athlete and a Sargent Shriver International Global Messenger and has been involved in leadership and community advocacy starting in 1999. A recipient of various awards, he received a Heroes Award from Special Olympics in 2002, a Voices Award in 2003 from NDSS. As a leader in advocacy he was presented with the NDSS first Dan Piper Award in 2006 at the World Down Syndrome Congress in Vancouver, Canada and received the NDSS 2014 Self Advocate of the Year award. David is a sought after public speaker. He is featured in the Firestarters book and many published articles highlighting his advocacy and accomplishments. One of his trademarks is his ongoing initiative to promote employment on the NDSS #DSWORKS Resource Guide for employers; his testimony at the Senate HELP committee on March 2nd 2011 in Washington DC, and his plea for human rights at the United Nations World Down Syndrome Day in New York City on March 21st, 2012. You can read about David at www.davideganadvocacy.com.
Samantha is a law partner at the firm of Hale Ball Carlson Baumgartner Murphy, PLC in Fairfax. She focuses her practice on Estate and Trust Administration, Special Needs Planning, and Fiduciary Litigation. After finishing law school in 2008 she completed a two-year clerkship with the Honorable Judge Dennis J. Smith of the Fairfax County Circuit Court. In addition to serving on DSANV’s board, she also currently serves on the Board of Directors for the Virginia Academy of Elder Law Attorneys.
Dave is the Founder of 3.21 Management and President of Lost Rhino Brewing Company and The Lost Rhino Retreat. He has 21 years of experience in the restaurant and hospitality industry since graduating from Spring Hill College in 1995 with a B.A. in English.
Sean, a lifelong resident of the Washington, DC Metro area, is Vice President at COLAMCO, Inc., a Florida-based information technology provider. He previously served as the Sales & Marketing Director at COLAMCO, led an $80M business at Hewlett-Packard in its Federal System Integrator Space. He has a deep network of contacts in the IT industry and plans to leverage those relationships to bring attention to DSANV. Sean is a graduate of Towson University where he holds a B.S. in Mass Communications.
Abel is a nationally recognized cybersecurity subject matter expert for the Federal Government and various information security organizations. He is a graduate of the State University of New York with degrees in computer science and business administration He is honored to serve DSANV helping to show that our kids have no limits. In his free time, he likes to take his family swimming, on camping trips, and supports local community theater.
Erin is employed full time at Rosetta Stone in Arlington, Virginia where she assists with reception and administrative duties. She is a 2010 graduate of George Mason University’s LIFE Program for students with developmental disabilities. She is a Buddy Ambassador for Best Buddies Virginia and serves on the board of the National Down Syndrome Society (NDSS). Erin has become a passionate and accomplished advocate for those with intellectual disabilities. She was awarded the PEATC Virginia Star Icon award in 2008 for her advocacy work and the 2008 Advocates in Disability award from the HSC Foundation in Washington, D.C. Her latest accomplishment is the award of both the O.Neill and Tabani Enrichment Fund and the 2009 Dan Piper Award for national recognition of a self-advocate from the NDSS.
Heather serves as the DSANV Director of Parent Support. She has been welcoming families to DSANV and the disability community for many years. She is a graduate of Western Michigan University with a degree in music performance (percussion) and holds a paralegal certificate from Meredith College in Raleigh, NC. She previously worked as a concert promoter/booking agent, paralegal, file space manager, and legal conflicts specialist. In her “free time” Heather likes to scrapbook and organize things.
Charlotte is a Community Outreach Specialist with the National Down Syndrome Society (NDSS). She is currently attending George Mason University working on a B.A. She earned an associate’s degree from the Northern Virginia Community College and graduated from Fairfax High School with a standard diploma. Charlotte was born with a heart condition and had four open-heart surgeries when she was young and recently became one of the very few people born with Down syndrome to receive a life-saving heart transplant! Her motto is to always give back to others, and she loves to have bake sales and donate the proceeds to various charities. These fundraising efforts have led to some exciting opportunities to give motivational speeches. She hopes to pursue a career as an author, professional baker, event planner and motivational speaker. She is determined to do her best to help ALL people with special needs!