Amy Van Bergen has been a nonprofit leader since 1991 and served as executive director of the Down Syndrome Association of Central Florida until her retirement in 2016. In 2010, she helped found Down Syndrome Affiliates in Action, the first trade association for parent-support groups and she also served on advisory groups for the National Down Syndrome Congress, National Down Syndrome Society and Global Down Syndrome Foundation. She continues to provide strategic planning support and interim leadership for nonprofits. Van Bergen is also the parent of five children, including a son with Down syndrome. She is also the proud Mamey to six grandchildren and a grateful dog mom to her trusty sidekick Baloo.

Email: executivedirector@dsanv.org